February 8, 2017 I know I’ve spoken here and there on what’s going on but here is a list of what EXACTLY chronic lyme has done to me so far :

The biggest ones: brain lesions. The fibromyalgia. The sciatica pain. Now the more specifics….Fluctuating blood pressure and heart rate, palpitations, hot flashes, thrush, weakened immune system, joint pain, pain and burning in hands, numbness on my entire left side to the point I now am using a cane to help because it’s like a damn block now. Back pain, stiff neck, blurred vision, “brain fog”, gastrointestinal problems. I’m either constipated or I’m having diarrhea, lovely photograph right there I know. I have daily migraines and vertigo and photophobia (light sensitivity) and also tinnitus (ringing in the ears). I’ve also had an odd fluctuation in lab works, the awesome thing about the hospital I go to, the MyChart actually has a graph where you can select certain things (example blood pressure, or specific lab results) and see if there is an increase or decrease and when and how much, it’s awesome. I cannot lift my son, if I didn’t have Aaron here with me, I would probably be sleeping all day, I can’t even imagine working nor would I be able to. If I’m lucky I get an hour of somewhat relief a day. I have trouble sleeping and when I do sleep I toss and turn, but I can never sleep in till 6, and then I’m terribly exhausted all day. I have irregularities in my cycle, and I have severe groin pain.

I’m pretty sure there’s a ton more I could list, but I’m blanking now. It is not fun. It is downright miserable, I absolutely hate it. I am praying hard that this treatment will get me back to feeling like a human again. I just want to not feel all this pain. I want to be able to walk 4 blocks without my leg hurting like crazy, without breathing hard, without becoming dizzy. I want to drive normally again. I want to work, I want to work out, I want to go back to hiking (well….i dunno about that, now I’m scared to go to anywhere ticks are!) I wanna go out and not feel 90 years old. I REALLY hope this treatment can make my quality of life actually be quality of life again….